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Prenatal Testing

Jeanette at Oh How I Love Jesus in her post Aborting the Disabled points us to an article with the same name in Christianity Today.

Senators Sam Brownback and Ted Kennedy are sponsoring legislation to require doctors to provide current medical information, treatment options and information about support services to parents of children that have been diagnosed with a disability based on prenatal testing.

A study was done that showed that many parents felt “pressured” into aborting.

I have a disabled daughter. She has epilepsy, moderate hearing and vision impairments and a developmental delay. Genetic testing was done when she was about a year old. She was found to have two chromosomal abnormalities; there are extra genes on her tenth chromosome pair and her nineteenth chomosome pair has a ring in a mosaic pattern. Each chromosome pair usually looks like a number eleven 11, hers have one that’s in a ring, or circle configuration so they look like a 10 and the mosaic is every other pair. So her 19th chromosome looks like this: 11 10 11 10 11 10 11 10…

When I became pregnant again, we decided to have an amniocentisis test done. We didn’t know if our daughter’s disabilities were a “fluke” or if they were the result of mixing the genetic material of her father and I. We were told that the odds were one in two humdred that anything untoward would happen. The procedure seemed to go just fine. We were asked what we would do if the test results showed the same genetic abnormalities. They asked if we would abort. The answer was a very loud NO. We wanted the testing so as to be prepared to deal with a disability. We didn’t want to eliminate it.

Unfortunately, I “hit the lottery” on that one in two hundred chance… Two days after the procedure, I got very sick, high fever and vomiting. We went to the hospital and they couldn’t find a heart beat. The next evening, I went into labor and delivered a perfect tiny boy. From his butt to the top of his head, he fit on my hand from the heel to the fingertips.

The hospital performed an autopsy. He died of a strep infection. Otherwise, he was perfect.

I guess this goes with the parents feeling pressured into aborting. I didn’t quite feel that, but the fact that I was even asked….

Welcome ByrdDroppings readers. Thank you Lorie.

South Park Conservatives – On O'Reilly

Brian Anderson, author of South Park Conservatives, was on the O’Reilly Factor last night in the impact segment. Here follows a transcript of that conversation:

Bill O’Reilly: Thanks for staying with us, I’m Bill O’Reilly. In the impact segment tonight: the media war between conservatives and liberals is as intense as ever and today, the liberal Los Angeles Times ran an op-ed piece and said the liberal radio network Air America is failing. Since the print media has been very generous to Air America, that was unusual. The author of the op-ed is Brian Anderson who also has written a new book called South Park Conservatives: The Revolt against Liberal Media Bias. Wow. Mr. Anderson joins us now. See I’m in the middle of this war here you know and it’s vicious.

Brian Anderson: Sure.

O’Reilly: First of all let’s just walk through the whole thing. What’s a South Park Conservative?

Anderson: Right. Well I use that phrase very loosely to refer to a new kind of anti-liberalism that we’re seeing in the culture. We’re seeing it in comedy, on Comedy Central, particularly with the show South Park, which just goes after the left viciously. It goes after the right too, but it’s something very new to see a program that makes fun of liberals. And I see a lot on college campuses. Both of these things I say in the book are growing out of a pretty big shift in our mass communications. Talk radio, cable news, and the blogosphere all of which are allowing views that have long been excluded from public debate to make their way right into that debate. Basically right of center views.
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Habemus Papum

New Pope! Joseph Ratzinger – Benedict XVI

White Smoke, Bells of St. Peters. Lots of cheering people.

More when known.

In the Mail (Friday)

On Friday we received copies of Brian Anderson’s South Park Conservatives: The Revolt against Liberal Media Bias. Review to follow (when I get a little time away from !!algebra!!, which is my current college course with Algebra 2 to follow – lots of work – not enough time!).

On another (similar) note, Brian Anderson was on Bill O’Reilly tonight and I have TiVo’d it and I will have a transcript sometime tomorrow (I have a little time for a transcript, not enough to read and write a review just yet).

Who Would Want to Live with Disabilities like These?

updated below
That’s what Beth Gaddy (36) said about her “Grandmamma” Mae Magouirk (85). The entire quote is as follows:

Grandmamma is old and I think it’s time she went home to Jesus. She has glaucoma and now this heart problem, and who would want to live with disabilities like these?

I first heard about this story yesterday via my friend Jeanette at Oh How I Love Jesus. Today, I see that other bloggers have picked up on it, including Instapundit, Mover Mike, GOP Bloggers, Polipundit, and Junk Yard Blog.

Mae Magouirk has signed a living will stating that she doesn’t want feeding and hydration if she is terminal, in a coma or vegetative. Mae is not in any of these conditions. Her granddaughter, Beth Gaddy, moved her to the hospice telling them that she held a medical power of attorney for her grandmother and that she wanted food and water removed. Gaddy did not have a medical power of attorney for her grandmother. Other, closer, family members (Mae’s brother and sister) are fighting for her life.

Unlike Terri’s case, there is clear direction given in a living will for care. This is being ignored by the granddaughter and the probate judge in Georgia who disregarded the living will and the lack of a durable medical power of attorney and gave guardianship to the granddaughter over the objections of closer relatives.

At 36, Beth Gaddy might not want to “live with disabilities like these”, but let her wait until she’s 81, maybe with the same disabilities, or more disabilities or worse disabilities. How much will she “want to live” then?

After Christopher Reeves’ accident, many people said, “I wouldn’t want to live like that.” They said so as able-bodied people. Christopher Reeves probably said something along the same lines when he was younger and not disabled. Once the accident took place though, he wanted to live his life to the fullest that he could.

No one wakes up one morning and says, “I want to have a disability that will effect my life forever.” When it happens, though, you live with it. You make changes to accomodate the disability. You may not be able to do some things that you enjoy anymore, but that doesn’t mean that you can’t find something else to enjoy that you can do.

I have a disabled daughter. She has epilepsy, a developmental delay and moderate hearing and vision losses. She doesn’t speak much, or very clearly. What will happen to her after I’m gone? Will someone, somewhere ask, “who would want to live with disabilities like those?” Would someone, somewhere decide that her life is not worth living, or that resources expended on her would be better spent elsewhere? And then decide to “euthanize” her?

Update: Dirty Harry says:

So, I await the outrage from the butchers who screamed for Terri Schiavo’s head. After all wasn’t their argument that we needed to respect Terri’s wishes? Well, we have a living will here. Let’s see if the death merchants are consistent and outraged that this woman’s “wishes” are being violated. Wishes she put in writing. Wishes that are being ignored. Let’s see if the death merchants fight to reinsert this feeding tube because all this really is about is what the patient wants, not getting rid of troublesome invalids. “Oh, no, not us.”

Update 2: The Glenn Beck Show audio of the interview with Mae’s nephew is here.

Welcome Anchoress and Cathouse Chat readers, please look around.

Little Changes That Become Big Changes

John Kass of the Chicago Tribune had a column April 1st titled Beware of letting the unacceptable become the norm.

He speaks about Terri Schindler Schiavo and wonders what is next…

I suppose that no matter which side of this you’re on, you’ll have questions. Those of you who think she should have died will wonder: When will people like me ever shut up about this?

And those of us on the other side will wonder which disability will next be judged as not affording an adequate quality of life? Whose lives are worthy?

But there is another question that won’t let go of me: How did we get to this place, where we’ve come to accept what was done to Terri Schiavo?

What was once horrible has now become acceptable, familiar the way a landscape becomes familiar. No matter how gruesome or spectacular, over time you become used to it. Eventually, you can walk through it without feeling any need to comment.

And that’s what’s being urged now, a general consensus forming by those who don’t want to hear complaints, that it’s time to be silent about Schiavo, that we shouldn’t give offense, that we should accept her death as inevitable, perhaps rationalize her death as a blessing.

When John heard the announcement on the radio he was reading a column by John Leo in US News and World Report who quoted Rev. Richard Neuhaus, editor of First Things.

He says he will memorize this quote. I think I will too.

“Thousands of ethicists and bioethicists, as they are called, professionally guide the unthinkable on its passage through the debatable on its way to becoming the justifiable, until it is finally established as the unexceptional.”

There was a day when the Playtex Cross Your Heart bra was advertised on television and the model wore the bra OVER a turtleneck sweater. Underwear, worn normally, was just not shown on television. Now Victoria’s Secret advertises bras with a lot less coverage directly on the model. This change was accepted completely.

There was a day when anti-perspirants and deodorants were advertised on television and the model demonstrated the product on the inside of the forearm. The brother of a friend of mine, when first using these products, put it on his armpits and on his forearms, because they did it on television. Armpits were just not shown in a television commercial. Now we see women applying the product correctly in television commercials. This change was accepted completely. We don’t see men applying the product though. I guess a man’s armpit still is just not shown on television.

Rob and Laura Petrie of the Dick Van Dyke show had separate twin beds in their bedroom. Two characters of the opposite sex, even if married, were just not shown in the same bed on television. Then came NYPD Blue and we saw the naked backsides of two male characters. This change was accepted completely.

These changes are insidious, they happen when we aren’t looking and then become accepted. It becomes “well, we can do this, so why can’t we do that?

Remember the Golden Rule? “Do unto others what you would have them do unto you.” That seems to have changed to “Do unto others whatever you can get away with, and if you get caught, put the blame on anything and anyone other than yourself.”

Congress May Extend Daylight-Saving Time

Update: My husband thinks they should just “split the difference” and change the time a half hour year round.

Congress is considering extending Daylight-Saving Time an additional two months to save more energy. The theory is, the more daylight, later in the day, the less energy used. They would start daylight-saving time on the first Sunday in March (instead of April, as it is now) and extend daylight-saving time to the last Sunday in November (instead of the current last Sunday in October). But not all parts of the United States switch to daylight-saving time. Arizona, Hawaii, parts of Indiana, Puerto Rico and the US Virgin Islands don’t change.

If they do so, on Halloween it will be lighter, longer. I’ve always thought it should be extended until at least the first Sunday in November to enable that. Even if Halloween is on a Sunday, it’s always darker an hour earlier. With the extension date being set to the last Sunday in November, there’s a little more light for Thanksgiving Dinner, and a little more time to get those Christmas lights hung…

mm-5